Saturday, September 3, 2011

The Art of the Defect

I have the opportunity to serve my mission with some very unique people. We have all overcome the trials we have faced and decided to serve the Lord. I myself have Muscular Dystrophy. My form of Muscular Dystrophy is called Charcot-Marie-Tooth, named after the three main scientists who "discovered" it. It is an inherited trait. I got it from my dad and I have another sister who also has it. The three of us enjoy sharing stories about how we stub our toes and don't feel it for a good 10 seconds later, or fun accidents that we have. We have some good laughs about some of the things that we do!

Because of my disability, I have had a few surgeries in my short life. The first one occurred when I was a junior in high school and the most recent was this past May. Due to my disability, and with no help from being in casts for 6 weeks, I kind of became an outcast in the eyes of the large majority of people I went to high school with. There were a few that were really good friends, but they seemed to be the exception, not the rule. In this time of trial in my life, I often ate lunch alone and found solace and comfort in my music.

I came to love Jack Johnson because his music was so comforting. Whenever I was having a bad day, whenever I was feeling bad for myself, I could listen to Jack and immediately a wave of peace and calming would settle over me and I knew that everything would be alright. In high school, one of his songs inspired me. It is called "People Watching". As I ate lunch, I would go to the second floor of my school which had a perfect view of the cafeteria. As I ate, I would watch my peers--watch how they treated each other, watch how they really acted, and discovered what kinds of people they really were. Throughout these weeks of watching, I longed to be there with them. I longed to be accepted for who I was and for them to be able to discover who I really am. Unfortunately, that never happened while I was in high school. But then college happened.